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Welcome to the Team Page of
Michiels for THE Cure

Michiels for THE Cure Statistics


Money Raised
Team Fundraising Goal: $5,000.00
Total Raised: $8,686.00


Members Recruited
Recruitment Goal: 50
Members Recruited: 20




Join Our Team


Join our team and help us support the cause!<br><br><br>Hi Everyone,<br><br><br>Last August we completed MaryKatherine's 3 year clinical trial in Denver. No earth shattering news and pretty confident this clinical trial will not provide a treatment or cure BUT we received excellent medical attention, have three years of tests which have documented her progression (currently she is at 70% kidney function) and the experience provided a very thorough examination of all her body parts commonly affected by PKD - heart, bowel, brachial arteries, CT of her head for Aneurysm's, Kidney MRI's, blood work, urine output, etc. And we love our Dr. Melissa there at Children's in Denver. She promises to keep us in mind for future studies and possible treatments. She is most excited for Tolvaptan possibilities.<br><br>I am doing ok and hoping to make it to the Mayo Clinic soon and join my cousin Jeff Michiels who is there in the Tolvaptan study and has "reversed" his progression to the point where he is now no longer heading to the transplant list. He is crazy excited about this.<br><br>More good news is that the PKD Foundation has a new CEO, Gary G. Godsey,who is aggressively working to rebuild the foundation in a way which will move it ahead particularly with "drug repurposing". Check it out at:<br>http://www.pkdcure.org/research/drug-development<br><br>Gary is super excited about these possibilities as it can find a treatment quicker and with half the cost. Drug Repurposing promises to find us a treatment drug as soon as 3 to 5 years. This would really put MaryKatherine in a position to save her good kidney function for a longer, healthier life.<br><br>AND now it is walk time of year so again we are contacting you and asking for your support. We only ask for it in one or all of the following three BIG ways:<br><br>1. Walk with us on the 28th of October - a Sunday<br>2. Talk with others about our disease to help build awareness<br>3. Give whatever you can to MaryKatherine's fundraising effort. Please no amount is too small.<br><br>Thank you for taking the time to read all of this and for your years of support and interest with us and PKD.<br><br>To donate to MK please go to:<br><br>http://sanfranciscowalk.kintera.org/pkdcure/marykatherine<br><br>To join our team for the walk please go to:<br><br>http://sanfranciscowalk.kintera.org/pkdcure/michielsteam<br><br>To donate to Katherine please go to:<br><br>http://sanfranciscowalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1028177&lis=0&kntae1028177=19B7D1D72AD84F42B4929400A58592F1&supId=362397128<br><br>Hope to see you on the 28th and sending lot's of love from Katherine and MaryKatherine<br>

Team Members:
Total Raised$8,686.00  
General Team Donation$600.00  
Katherine Michiels$5,801.00  
   Jennifer Atristain$0.00  
   Olivia Barnum$0.00  
   Arrow Barrow$0.00  
   Bev Benson$1,765.00  
   Heidi Dittmar$30.00  
   Claire Fahy$0.00  
   Orla Fahy$60.00  
   Christina Farran$45.00  
   Cole Feutsch$0.00  
   Bubble '07 Johnson$0.00  
   Claire Kamibayashi$0.00  
   Patricia Kievlan$0.00  
   Katherine Michiels$345.00  
   Ellen Moore$40.00  
   Peg OMalley$0.00  
   Laura Philpot$0.00  
   Lyze Smith$0.00  
   Samantha Tripodi$0.00  
   Susan Weideman$0.00  



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